In the long-running battle over health care, doctors, hospitals and insurance companies have spent millions of dollars this year. But some of the most effective advocacy has come from pint-size petitioners who spent nothing at all: children with serious medical needs who told their stories to members of Congress.
“We were often told that the kids were not voters,” Ms. Corbin said. “But they will have this genetic condition for the rest of their lives. They will be voters, and these laws will affect them. So it’s important for them to have a voice.”
The House Democratic leader, Nancy Pelosi of California, said the young lobbyists “have made all the difference in the world.” And she described the parents as formidable: “You do not want to stand in between one of these moms and the good health care of her child.”